Monday, July 28, 2008

Real Talk: Deedles Unwrapped

I know some of you have been concerned of my whereabouts.  Thank you.  

A few of you know exactly where I've been and what I've been doing...thank you so much for being here for me. 

I'm not a person who likes to show their weakness and I HATE for people to take pity on me, so PLEASE don't.

My life has changed since you last heard from me...

First of all (and I have yet to take the pics off my camera, so expect more soon) the Andre Iguodala  Celebrity Weekend was this weekend and ya girl took pictures with Morris Chestnut and Chico Benymon (Spencer from Half and Half).

I took the boys and my nephew to the celebrity basketball game Saturday and we had a good time.  We got to meet Dee Brown, newly signed to the Washington Wizards and Channing Frye of the Portland Trailblazers (that dude is 6'11 WOW).

That was the highlight of my weekend.  The low?

I went to the doctor on Wednesday and he didn't like my lab results and he told me that if the vascular surgeon ok'd my fistula's maturity, that he wanted me to start my hemodialysis treatment on Friday.

I think that for all I've been through physically and mentally, I'm a trooper.  Let me tell you...when it comes to dialysis, I'm a PUNK.  I didn't cry, well, not much.  That shit HURTS!  They put two not so small needles in you in the same location, every other day.  There's a topical creme that kind of numbs the area for you, but it does nothing for the pain you feel after the treatment.

And it wears me out physically.  I'll be doing this 3 times a week for 4 hours until I receive my healing (Yes, I'm STILL believing for it!).

Trust me when I tell you that I take some of your words of encouragement and support in to the center with me.  (I love each one of you for it).

Right now the biggest effects it has on me is I get REALLY tired fast now and I have muscle spasms/cramps and it's hard for me to sleep.  My appetite is almost nil (I'm making myself eat Kesha dammit! LOL) and I've lost some weight.

They say in about 2 weeks my body will adjust and I'll feel better.  In the meantime, I have some other issues that concern me, so I'll be visiting another doctor on Friday.

That's all for me...What's been up with you since we last talked?

Oh, and I'll still be able to make the Labor Day Weekend out east!! 

59 comments:

  1. yes you are a trooper and you are in my prayers. Not a lot going on with me since we last talked other than some medical ish going on for me as well. Sounds like you had fun with the celebrity weekend, that is great :)

    ReplyDelete
  2. Well I am glad u had a good weekend with the boys. You are in my prayers as far as your health is concerned. If God can bring you to it He will bring you through it. You have to keep the faith and be prayerful for your health. Oh and yea u betta be eatin woman.

    ReplyDelete
  3. Oh and as far as me, nothin major goin on. Gettin a bigger belly day by day, baby kickin da crap outta me regularly, workin on some home things. Other than that everything is everything.

    ReplyDelete
  4. When are you due again? *thinking I'mma need to make a baby holding trip*

    ReplyDelete
  5. November 5th is the due date.....and feel free to come on out and do some holding... I KNOW Im gonna need all the help I can get....

    ReplyDelete
  6. Wow Deedles that is a lot of time out of the week that that takes. Sigh... I hope you can invest in a portable dvd player and a membership somewhere... cause wow.

    You seem to be a very strong woman, so I believe you will make yourself get through this so you can go ahead and get that healing you are waiting on :)

    ReplyDelete
  7. A "trooper" is putting it mildly. Twin, you are a warrior. I know its cliche, but there's a reason the word "testimony" contains the word "test". You are in my prayers daily (sometimes more than that) and I know God is doing big things for you and through you. Keep looking up.

    ReplyDelete
  8. They do provide you with a private television connected to your dialyzer and a cute lil bag with your own blanket, squeezie thingy and earphones. To make you feel good, I guess about having to be there.

    One thing that did have some effect on me is the words of encouragement they include. It's just a notecard with words that seasoned dialysis patients have written to new patients. I read 3 cards and cried. It was very touching.

    ReplyDelete
  9. Well you know what i been up to seen we last talked cause it was not too long ago....I'm looking at you kinda crosseyed...cause i want a full report tonight of what you done ate. Damn right...even if its just a cracker!

    I'm glad you had a good time with the boys....and you know that i'm in total agreement with you on your healing! You are a strong woman...and damnit...to say i'm proud of you and how well you are maintaining is an UNDERSTATEMENT!

    That being said...im finna go do my paper so i can talk with you later today. AND YES...i done made progress! : 0 )

    ReplyDelete
  10. ***bigbig hugs****

    I send my love and continued prayers for your healing.... Take me with you wherever you need to go!

    ReplyDelete
  11. That is really nice that they do that. Anytime you know you are not the only one, it makes it just a little bit better. :)

    ReplyDelete
  12. Dee, keep the faith and keep standing tall. You are doing great!

    Now as far as you seeing my husband Morris in person......I'm JEALOUS!!!!

    ReplyDelete
  13. ((((BIG HUGS))))

    Deedles when people come in to provide support it's not to show pity. It's to provide strength, to provide comfort, and to provide friendship, and love. It's to let you know you have people who have your back, even from afar. To make you laugh even. Now if you were an attention whore yeah we would be like "OMG there she goes again, wanting pity, uggggghhhhhhh"

    *wink*

    It's so funny you post the photo of Morris. I just watched The Best Man, and The Brothers yesterday. LOL Morris is a handsome fella. Yes indeed.

    ReplyDelete
  14. Dee, keep your head up young woman! That kidney is on its way! Be blessed!

    ReplyDelete
  15. My uncle went thru this for years before he got his transplant. He got a call at 3:00 am one morning & was on his way to surgery.

    Keep your faith (not like I have to tell you that) & tell my lil boyfriend and J that they need to be on it when it comes to helping you out. I've seen 1st had what those treatments will put you thru.

    *Hugs*

    PS My cousin is an Organ Procurement Coordinator for the Midwest region. If you have any questions, I'd be happy to pass them along to her.

    ReplyDelete
  16. I have a a great friend who went through this too. He had a transplant about a year ago and he's doing GREAT.

    The strangest thing...I don't know if they do this for everyone, but in his case they didn't remove the failing kidney, they just added the donated one...so now he's got THREE kidneys.

    ReplyDelete
  17. Lee, that's funny. I wonder if they did the same with my mom, who had her transplant a couple of years ago as well.

    And Mo's right..that phone call is very unexpected, worrysome, nerve-wrecking yet exciting all at once. And by the by, mom is doing great as well, minus a few minor setbacks here and there. The important thing is the kidney is NOT rejecting..thanks be unto God. Her numbers went down almost immediately post op

    People on dialysis are so incredibly strong. I have no idea how mom did it, and worked a full time job, and still did ministry too.

    ReplyDelete
  18. (((hugs))) words of encouragement are meant to do just that, so take this with you and read frequently whenever you feel discouraged.

    If I can but keep on believing
    What I know in my heart to be true,
    That darkness will fade with the morning
    And that "this will pass away, too!" ...

    Then nothing in life can defeat me
    For as long as this knowledge remains
    I can suffer whatever is happening
    For I know God will break all the chains
    That are binding me tight in "the darkness"
    And trying to fill me with fear ...
    For there is "no night without dawning"
    And I know that "my morning" is near.

    ReplyDelete
  19. *TNP sitting here with a puzzled expression on her face*

    ReplyDelete
  20. Continue to pray for your healing Deedles it will come.

    I have a family member who was on dialysis and he talked about how exhausted it left him.


    ....3 kidneys....hmmmm I got a blank stare and a question mark for that lol

    ReplyDelete
  21. Glad to see you'll still be able to make Labor Day Weekend. I am looking forward to hugging all my Multiply peeps! Of course you'll be in my prayers. As you said, your healing IS on the way! God will never lead you where he won't protect you. Believe that!

    ReplyDelete
  22. I will meet with my social worker for the first time tomorrow. I'm SURE I'll be talking to you about this soon enough!

    ReplyDelete
  23. Sounds like you had a wonderful time. Dialysis is very exhausting and I am continuously praying for you. It really breaks you down.

    ReplyDelete
  24. I SOOO don't want to appear like that! Thank you...

    *snicker* were your ears burnin yesterday?

    ReplyDelete
  25. That my dear is routine. Donors live life with one kidney. Recipients live with 3.

    ReplyDelete
  26. They did and thank you Kels.

    I don't know how she did it either. I'm VERY thankful to have a bit of time saved up!

    ReplyDelete
  27. Thank you lady! Hope to see you again soon!

    ReplyDelete
  28. You get dialysis three days a week?

    ReplyDelete
  29. Thanks hon, now tell me about the barbeque!

    ReplyDelete
  30. It was sooo fun. I saw family that I hadn't seen since Katrina. It was so refreshing!

    ReplyDelete
  31. Tuesday, Thursday and Saturday at 6:20 am.!

    ReplyDelete
  32. Girl, yo boyfriend has worn me out checking on me today, lol. But I let him and don't say a word.

    ReplyDelete
  33. Awwww...my son gets like that when I'm sick. Its very sweet. I'm glad they are taking care of mom. Good young men you got there, Twin.

    ReplyDelete
  34. I have a combined function of 9%, so they're shot. It's a hereditary thing. My grandmother died in 1965 at age 34 because the dialyzer had not yet been available. In 1970, my aunt died of kidney failure at age 17, but she was the first in our city to use the machine.

    My aunt and uncle are also on dialysis, but my father and two sisters have no kidney problems.

    It's definitely a family affair.

    I'm glad you had a good time! Did you get my message?

    ReplyDelete
  35. He was telling about it. It took me the LONGEST to believe him...he has such a dry sense of humor I thought he was pulling my leg. I had to go investigating online because its just like him to say something crazy and let me believe it. I guess I never really did believe him, I believed WebMD...LOL!!

    If you need ANYTHING, Twin, please let me know.

    ReplyDelete
  36. Best believe when I get the info I need I will be requesting donors! LOL

    ReplyDelete
  37. When K was talking to me about the things I can and can't eat, I was talking about the things I will and won't eat and I told her some of the stuff you like is as good as cussin at me!

    You can have my portion of spaghetti squash missy! LOL

    ReplyDelete
  38. ROFLMAO

    Ohhhh ok.

    But it's so good for you!!! I plan to buy some this weekend. LOL

    ReplyDelete
  39. you know where I am, woman.... any time, any place, no questioned asked.... *huggin you tight*

    MaMern is currently on dialysis 3x a week too, so any questions, you have another source of answers and info. and until your body adjusts to the treatments, no more "superwoman" stunts, ok? dont make me have to catch a flight. Sis will be here on the 7th to get Momma and Pops... I WILL take an LOA and hop in da trunk on yo hindpotts!

    I'ma look for something special for you to take with you...

    ReplyDelete
  40. How you on my page, when I'm on your page?

    ReplyDelete
  41. *big hug*

    Continue believing in God for your healing! Trust me, HE can do it.

    *another big hug*

    ReplyDelete
  42. Thank ya Sis! *whisperin* Yo fiance's been harassing me

    ReplyDelete
  43. I was just wonderin the same thang... lol


    and I see you bein all fly with da hair and whatnot... you know the fool gon' have something to say about it.... *eyeroll*

    ReplyDelete
  44. Don't nobody give 1 let alone 2 damns about that boy! LOL

    ReplyDelete
  45. *hugs* I am standing in agreement of your healing too. Take care of yourself sis. We want you in perfect order when that phone call comes.

    ReplyDelete
  46. *taking a break from paper*...is it me or is morris chestnut just delicious?

    Do ya'll remember that scene in the best man when he walk in the club *drip*....good goobably goo!

    Yes indeed! SEXUAL CHOCOLATE!! *stumps foot...drops mic...and heads back to finish paper*

    ReplyDelete
  47. *hugs and prayers* Take care of yourself. Please eat. Looking forward to meeting you on Labor Day weekend.

    ReplyDelete
  48. You need to take that on back ova to your page.....Morris has been mine for many a years and he said you aint his type!!!!

    ReplyDelete
  49. Sis... you are stronger than I think alot of people (including myself) would be in your situation. I'm claiming good health for you and sending it up in prayer. I'm here if you need me. *hugs*

    ReplyDelete
  50. Sending many, many prayers my friend. Im sorry you have to go thru that. (((HUGS))

    ReplyDelete
  51. Prayers out to you!..Keep the chin up and hang in there..we love you gf!

    ReplyDelete